BARD-online is a multi-purpose platform for paediatric cholestatic disorders, such as biliary atresia and relted diseases (BARD).
Featured links
British Paediatric Surveillance Unit
The British Paeditric Surveillance Unit (BPSU) enables doctor and researchers to fnd out how may children in the UK and Republic of Ireland are affected by particular rare diseases or conditons each year.
The Unit was set up in 1986. It is a joint initiative of the Royal College of Paediatrics and Child Health (RCPCH), Public Health England (PHE) and the Institute of Child Health (ICH) to support research into rare childhood disorders.
Cardiff University
Cardiff University is a public research university located in Cardiff, Wales, UK. The university is composed of three colleges: Arts, Humanities and Social Sciences; Biomedical and Life Sciences;and Physical Sciences and Engineering.
CORE INFO Cardiff Child Protection Systematic Reviews
A collaboration between the NSPCC and the Early Years research section of the Cochrane Institute of Primary Care and Public Health, Department of Child Health, School of Medicine, Cardiff University.
Eurosurveillance
Eurosurveillance is a European peer-reviewed scientific journal devoted to the epidemiology, surveillance, prevention and control of communicable diseases, with a focus on such topics that are of relevance to Europe. It is a weekly online journal, with 50 issues per year.
International Network of Paediatric Surveillance Units
The International Network of Paediatric Surveillance Units (INOPSU) is a collaborative organisation. Established in 1998, it currently joins 12 diverse countries which span the globe from Canada to New Zealand. More than 8000 clinicans contribute and over 200 conditions have been studied so far.
Lesotho-Wales Health Link
Dolen Cymru is an independant charity which fostered a unique country to country link between Wales and Lesotho. Since 1985 life-changing partnerships have been created between communities, schools, health organisations and individuals.
Orphanet
Orphanet is the reference portal for information on rare diseases and orphan drugs. Orphanet's aim is to help improve the diagnosis, care and treatment of patients with rare diseases.
OrphaNews is the freely available twice monthly electronic newsletter of the European Union Committee of experts on rare diseases (formally the EC Rare Diseases Task Force):
Royal College of Paediatrics and Child Health
The Royal College of Paediatrics and Child Health (RCPCH) is responsible for training and examining paediatrcians in the UK. The College has over 15,000 members in the UK and abroad and sets stanards for professional and postgraduate medical education. RCPCH Wales works on members behalf and externally to influence policy and leglisaton around paediatrics and child health.
The Children and Young People’s Wales Diabetes Network (and Brecon Group)
The Children and Young People's Wales Diabetes Network (and Brecon Group) connects all healthcare staff in Wales working with children and young people who have diabetes. It includes representatives of all clinical professions, staff from organisations concerned with childhood diabetes, parents and young people.
